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Privacy Policy

Why do we collect personal information?

We collect personal information about those who have registered an interest in being involved in our work and patients, clinicans and researchers who have agreed to be involved in our work, as well as customers, suppliers, contractors, job applicants and other contacts to understand and meet their needs, to conduct our activities and meet legal obligations.

What personal information do we collect?

The types of personal information we may collect include contact information (such as your name, address, email address and telephone number), information about your employer or the organisation you are associated with, and any feedback that you provide to us about our work or other matters. Sometimes our activities require us to collect sensitive clinical data and information. In general activities with us we will not collect sensitive information from you. However if you wish to be involved in a project where you share this information with us, before you do so you will be taken through a consent process and informed fully about the management of this sensitive data. This information can be requested by contacting info@genieus.co

What other information do we collect?

Personal information may be collected by way of forms filled out by individuals (including via online forms), surveys, emails, and market research, face-to-face meetings and interviews. You may in some circumstances have the option of not identifying yourself or using a pseudonym when you deal with us. However, if you choose not to provide the information we need to fulfill your request for a specific product or service or to participate in standards development activities we may not be able to provide you with the requested product or service or we may not be able to allow you to participate in our activities. Genieus does not collect data about who uses its website. You can use our website without cookies and we do not track your usage of our website.

How might Genieus use and disclose your personal information?

Genieus may use and disclose your personal information for the primary purpose of collection, or for reasonably expected secondary purposes which are related to the primary purpose, or for purposes to which you have consented, and in other circumstances authorised by the Privacy Act. Generally, Genieus may use and disclose your personal information for a range of purposes, including to:

• provide you with our products or services that you have requested;

• respond to your queries or feedback;

• analyse and improve all aspects of our business including, but not limited to, our business systems, processes, outcomes, communication, website, engagement and performance;

• provide you with any communications or publications in which we think you might be interested, or which you have requested;

• let you know about developments in our procedures, products, services, activities and programs that might be useful to you;

• facilitate your participation in social events and educational events;

• consider and manage funding applications for delegates to international and interstate committee meetings; and

• consider employment applications.

Disclosure of personal information to other parties

Genieus may disclose your personal information to third parties such as our project partners, our external service providers that provide services to us (such as training, website hosting or cloud storage, distribution of newsletters, standards and other publications developed by Genieus, and market research), other standards development organisations, your employer or nominating organisation, government, statutory or regulatory bodies and other committee members. We may disclose your personal information for the purposes set out above.

 

We may also disclose your personal information if it is required or authorised by law, where disclosure is necessary to prevent a threat to life, health or safety, or where we are otherwise permitted by the Privacy Act.

 

We do not sell or license your personal information to third parties.

Security and management of personal information

Genieus will take reasonable steps to protect the personal information we hold from misuse and loss and from unauthorised access, modification or disclosure. The ways we do this include:

• limiting physical access to our premises;

• limiting access to the information we collect about you (for instance, only those of our team who need your information to carry out our business activities are allowed access;

• requiring any collaborative third party providers to have acceptable security measures to keep personal information secure; and

• putting in place physical, electronic, and procedural safeguards;

 

If we no longer require your personal information and are not legally required to retain it, Genieus will take reasonable steps to destroy or permanently de-identify the personal information in line with our retention schedule.

Genieus Genomics Pty Limited (ABN 56 632 115 096) is a genomics R & D company focused on diagnostic services, therapeutic development and delivery for neurodegenerative disease. References to "Genieus Genomics", “Genieus”, "we", "us" and "our" in this Privacy Policy refer to Genieus Genomics Pty Limited.

 

Genieus is bound by the Australian Privacy Principles (APPs) contained in the Privacy Act 1988 (Cth) (Privacy Act). The APPs are designed to protect the confidentiality of information and the privacy of individuals by regulating the way personal information is collected, used, disclosed and managed. Personal information is, generally speaking, information or an opinion relating to an identified, or reasonably identifiable, individual.

 

This policy explains the types of personal information that we may collect and hold, how that information is used and with whom the information is shared. It also sets out how you can contact us if you have any queries or concerns about this information.

Genieus Genomics Pty Limited (ABN 56 632 115 096) is a genomics R & D company focused on diagnostic services, therapeutic development and delivery for neurodegenerative disease. References to "Genieus Genomics", “Genieus”, "we", "us" and "our" in this Privacy Policy refer to Genieus Genomics Pty Limited.

 

Genieus is bound by the Australian Privacy Principles (APPs) contained in the Privacy Act 1988 (Cth) (Privacy Act). The APPs are designed to protect the confidentiality of information and the privacy of individuals by regulating the way personal information is collected, used, disclosed and managed. Personal information is, generally speaking, information or an opinion relating to an identified, or reasonably identifiable, individual.

 

This policy explains the types of personal information that we may collect and hold, how that information is used and with whom the information is shared. It also sets out how you can contact us if you have any queries or concerns about this information

Links from our website to other websites

Under the APPs, you may be able to obtain a copy of the personal information that we hold about you. The APPs provide some exceptions to your rights in this regard. To make a request to access this information, please contact us in writing at the contact address set out below. We will require you to verify your identity and specify what information you require. We may charge a fee to cover the cost of verifying the application and locating, retrieving, reviewing and copying any material requested.

Accessing the information we hold about you

Under the APPs, you may be able to obtain a copy of the personal information that we hold about you. The APPs provide some exceptions to your rights in this regard. To make a request to access this information, please contact us in writing at the contact address set out below. We will require you to verify your identity and specify what information you require. We may charge a fee to cover the cost of verifying the application and locating, retrieving, reviewing and copying any material requested.

Updating your personal information

We endeavour to ensure that the personal information we hold about you is accurate, complete and up-to-date. Please contact Genieus at the contact address set out below if you believe that the information we hold about you requires correction or is out-of-date.

Sending information overseas

As part of the work Genieus does it retains all data in Australia and does not share this with parties outside of Australia.

Updates to this Policy

This Privacy Policy will be reviewed from time to time to take account of new laws and technology, changes to our processes and practices and the changing business environment. Genieus reserves the right to amend this at any time and the current version of this Privacy Policy is available at www.genieus.co/privacy-policy

Complaints

If you are concerned that we have not complied with your legal rights or applicable privacy laws, you may bring a complaint internally through our complaints process or you may decide to make a formal complaint with the Office of the Australian Information Commissioner (www.oaic.gov.au) (which is the regulator responsible for privacy in Australia). We will deal with complaints as follows:

 

Step 1: let us know

• If you would like to make a complaint, you should let us know by contacting our Privacy Officer (see below for contact details).

 

Step 2: investigation of complaint

• Your complaint will be investigated by our Privacy Officer.

• A response to your complaint will be provided in writing within a reasonable period.

 

Step 3: contact OAIC •

We expect our procedures will deal fairly and promptly with your complaint. However, if you remain dissatisfied, you can also contact the Office of the Australian Information Commissioner as follows:

 

Office of the Australian Information Commissioner (OAIC)

 

Complaints must be made in writing.

 

1300 363 992

Director of Compliance

Office of the Australian Information Commissioner

GPO Box 5218 Sydney NSW 2001

www.oaic.gov.au

Contact us

Any complaints or correspondence in relation to this Privacy Policy should be sent to The Privacy Officer at Genieus Genomics:

 

Suite 206, 19a Boundary Street

Darlinghurst, NSW, 2010

Attention: The Privacy Officer

Email: info@genieus.co

 

We will endeavour to respond to all complaints and correspondence promptly.

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